My husband went with my son and my mom stayed with me. I count it as a blessing that by this point I was exhausted. I nodded in and out of sleep till I received a call from my husband around midnight. Once at the hospital they had diagnosed my son with Transposition of the Great Arteries. A condition where his pulmonary artery and aorta were connected to the wrong chamber of his heart and his body was not pumping oxygen rich blood to his body. We knew later that week he would have a surgery to "correct" this condition.
Still as I write this I am filled with so many emotions. It's one of those things you think will never happen to you. While I was pregnant I think I skipped the chapters in books about having a child with special needs. But it did happen to me. My son was born with a heart condition and my journey as a "Heart Mom" began.